SGAN Register

The SGAN Register is a crucial component of the Network's activity. The primary aim of the Register is to collect basic information on children and young people who present to SGAN clinicians with any form of DSD or genital anomalies except unilateral undescended testis. Notification to the Register is performed by clinicians and following notification, patients and/or their parents are informed of the Register and can opt-out if so desired.

The data in the Register are currently used for internal auditing of the type and frequency of conditions encountered within SGAN. In the future, these data will also act as a resource for future research into epidemiology, aetiology and management of these conditions. Ethics approval will be necessary for such studies and investigators who are interested in such research projects are encouraged to contact a member of the Executive Group to develop their ideas further.

Limited financial support maybe available for Junior Medical Staff in Scotland who would like to use the Register for Audit or Study. Please contact the SGAN Office for for further information.

The SGAN Register Information Leaflet for Patient/Parent can be accessed by clicking here.

The dataset used for collating information can be viewed by clicking here.
The guide for completing the dataset can be viewed by clicking here.