Information

The network would like parents to become involved with the network; helping us to develop information leaflets and improve services, for example. Please find attached the Getting Involved Leaflet. If you are interested, please get in touch.
GETTING INVOLVED

SGAN REGISTER

The SGAN Register is a crucial component of the Network's activity. The primary aim of the Register is to collect basic information on children and young people who present to SGAN clinicians with any form of DSD or genital anomalies except unilateral undescended testis. Notification to the Register is performed by clinicians and following notification, patients and/or their parents are informed of the Register and can opt-out if so desired.

The dataset used for collating information can be viewed by clicking here.
The guide for completing the dataset can be viewed by clicking here.