Information

Information Leaflets developed by the network are available.

SGAN Information Leaflet - this leaflet will tell you what SGAN is and how the network will help improve services for patients in Scotland with DSD. It also outlines the SGAN Register. (See also SGAN Register section)
This leaflet is also available in Urdu, Punjabi, Mandarin, Arabic, Polish

Hypospadias Information Leaflet
This leaflet is also available in Urdu, Punjabi, Mandarin, Arabic, Polish

The network would like parents to become involved with the network; helping us to develop information leaflets and improve services, for example. Please find attached the Getting Involved Leaflet. If you are interested, please get in touch.
GETTING INVOLVED

SGAN REGISTER

The SGAN Register is a crucial component of the Network's activity. The primary aim of the Register is to collect basic information on children and young people who present to SGAN clinicians with any form of DSD or genital anomalies except unilateral undescended testis. Notification to the Register is performed by clinicians and following notification, patients and/or their parents are informed of the Register and can opt-out if so desired.

The dataset used for collating information can be viewed by clicking here.
The guide for completing the dataset can be viewed by clicking here.